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Feeding Strategies in Babies with Down Syndrome

Feeding Strategies in Babies with Down Syndrome

Babies with Down Syndrome commonly have developing difficulties with speech and swallowing which may be addressed very early. Your baby is likely to have low oral tone including the muscles of the oral cavity. The lips and tongue are especially at risk to develop less strength that is needed as your baby grows, necessary for breast or bottle feeding, eating and speech. Because of the low tone, the tongue appears oversized, flaccid with a rounded tip and frequently at rest between the gums.

The tongue is very important in feeding. The soft palate or roof of the mouth is a soft spot growth plate like the fontanelles on he head, which eventually close as your baby grows. The stimulation of sucking the tongue against the palate is important to stimulate this closure. There is also a connection with fluid in the ears, another common problem in babies with Down Syndrome. It is critical that she sits upright to feed, with her ears higher than the mouth, to reduce the likelihood of ear fluid. Place the nipple lower than your baby’s mouth. If the tongue stimulates the palate during sucking adequately, which will also occur with proper positioning, the palate will develop in a smooth, arched manner. If her mouth is closed, her tongue is in an active phase of toning against the palate. If not, a high narrow palatal vault with a bony notch will develop. If fed in a reclined posture, your baby is susceptible to ear infections. Reclined feeding may encourage mouth breathing thereby generating more mucous in the nose which would the drain to the ear by way of the Eustachian tube.

For young infants, use a Playtex Nurser with the bag liners. Take the baby’s lead. When he sucks, press the bag to increase the volume of liquid drawn in by the tongue. He will exercise his tongue every time you press. Don’t press if the baby stops to breathe or swallow. Let the baby rest when he needs to because his endurance may be poor. Your baby will be exercising his tongue every time you press, and increase the strength of his tongue.

Babies over 8 months may be ready to use a straw which will exercise their tongue by sucking through it. It will help her retract or pull back her tongue while pursing he lips. The first straw should be straight and short, and the baby may need to tae a large amount of the straw in her mouth. As the baby increases her tongue strength, allow les and less of the straw to go into her mouth, so the tongue can be further challenged. As the baby improves her ability to use only” of a straw into her mouth to suck, give her a longer straw. The Party stores sell all kinds of straws with twists and turns that are colorful and attractive. Gradually add more complex straws as your child is able to use each one.

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Frenum Freedom

Frenum Freedom

This is a quick look at how tongue ties and upper lip ties may affect function in a variety of ways through the course of one's life. This animated video is recommended as the first place to look for a good overview about how this common anomaly can cause potentially serious health conditions.

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Interactive Metronome

Interactive Metronome

Improves attention, focus, timing, motor planning and language processing because of the brain’s neuroplasticity. It is accomplished by having the clients perform a variety of 13 exercises in high repetition while hitting sensors on the hands and feet at the exact moment a cowbell is heard through headphones. Patients require 10 to 15 hours of treatment and can be used with children as young as 6 years of age.

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Orofacial Myofunctional Therapy

International Association of Orofacial Myology

Orofacial Myofunctional Therapy

International Association of Orofacial Myology

The mission of the IAOM is to improve the health of the public by advancing the art and science of Orofacial Myology by:
1. Increase the awareness and ensure access to quality primary health for the treatment of orofacial myology disorders
2. Maintain the highest professional standards possible through promotion of educational opportunities an administration of the certification process
3. Increase the body of knowledge through scientific research
4. Represent professional interests of orofacial myologists
5. Promote and encourage interdisciplinary relationships with allied health professionals.

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International Association of Tongue Tie Professionals

International Association of Tongue Tie Professionals

An organization of professionals of various disciplines whose focus in on tongue-tie and upper lip tie to faciliate the health and well being of newborns through all age adults. This includes surgeons, IBCLCs, orofacial myologists, academics and bodyworkers. They are committed to the most up to date information about tongue-ties.

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Childhood Apraxia of Speech

The Cherab Foundation

Childhood Apraxia of Speech

The Cherab Foundation

The Cherab Foundation is a world-wide nonprofit organization working to improve the communication skills and education of all children with speech and language delays and disorders. Our area of emphasis is verbal and oral apraxia, severe neurologically-based speech and language disorders that hinder children’s ability to speak. The Cherab Foundation is committed to assisting with the development of new therapeutic approaches, preventions and cures to neurologically-based speech disorders. We bring together parents and medical, research, and educational professionals. Please join us and help to give our children a smile and a voice.

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ADDA

ADDA

ADDA provides information, resources and networking opportunities to help adults with Attention Deficit/Hyperactivity Disorder (AD/HD) lead better lives.

We provide hope, empowerment and connections worldwide by bringing together science and the human experience for both adults with AD/HD and professionals who serve them.

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Autism Society

Autism Society

The mission of the Autism Society of America is to promote lifelong access and opportunity for all individuals within the autism spectrum, and their families, to be fully participating, included members of their community. Education, advocacy at state and federal levels, active public awareness and the promotion of research form the cornerstones of ASA’s efforts to carry forth its mission.

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